Your child’s primary physician can assess and manage GI problems when they first start. A gastroenterologist will consider more complex causes if problems continue. Occupational therapists or speech therapists can assess eating by mouth and swallowing issues. A radiologist can assess swallowing. A dietician makes nutritional recommendations. Complex care and palliative care clinicians bring expertise in causes of GI symptoms that are due to the altered nervous system.
Gastrointestinal
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Children with SNI can have ongoing and/or sudden gastrointestinal (GI) problems. They will likely benefit from assistance in maintaining predictable bowel movements, and may have gastroesophageal reflux disease (GERD) more commonly called acid reflux. Sometimes medical treatments can help with symptoms. Other times there may be problems that continue despite treatments. It is important to recognize as the brain changes, so will your child’s ability to digest food and process signals like pain from the GI organs.
Adapting to Diagnosis
Collecting information, care and support as issues emerge for your child and your journey begins.
Building Strengths
Maximizing your child’s core skills and family resiliency to develop a foundation for the journey.
Adjusting to Changes
Making decisions and adapting to your child’s evolving baseline throughout the journey.
Navigating Decline
Re-orienting goals and finding support alongside declines in your child’s condition, preparing you for the end of your child’s journey.