Your child’s primary physician will monitor weight compared to body length as an indicator of sufficient calorie intake. A dietician can recommend diet changes or supplements. An endocrinologist can assess problems that alter growth. A speech therapist can review techniques to make diet by mouth safer and, with a radiologist, assess swallowing. A gastroenterologist and palliative care or complex care clinician can help guide decisions about ways to deliver nutrition.
Nutrition and Growth
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Growth is a natural biological process. Growth depends on many factors including nutrition, hormone balance, and what is inherited from the family, and it can be affected by the presence of a chronic disease or disorder. How nutrition is received over time may change in children with SNI. Some will eat by mouth for years while others will never have the ability to do so. Some families are faced with decisions about whether or not to introduce a feeding tube as part of their child’s nutrition plan.
Adapting to Diagnosis
Collecting information, care and support as issues emerge for your child and your journey begins.
Building Strengths
Maximizing your child’s core skills and family resiliency to develop a foundation for the journey.
Adjusting to Changes
Making decisions and adapting to your child’s evolving baseline throughout the journey.
Navigating Decline
Re-orienting goals and finding support alongside declines in your child’s condition, preparing you for the end of your child’s journey.