Your child’s primary physician can monitor for emerging orthopedic issues. Physical and occupational therapists can access orthopedic issues, manage therapy needs, and recommend optimal positioning equipment. A physical medicine and rehabilitation specialist or orthopedist can monitor for musculoskeletal issues. Complex care and palliative care clinicians can assess baseline medical status and provide support for considering surgical treatment options.
Musculoskeletal
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Children with SNI often develop issues related to the musculoskeletal system, commonly known as orthopedic (“ortho”) issues. The earliest symptoms of orthopedic issues are not necessarily unique to children with SNI, but without intervention may have much more severe effects on the child’s quality of life and can worsen as the child ages and their underlying condition progresses. Monitoring involves routine examination and x-rays.
Adapting to Diagnosis
Collecting information, care and support as issues emerge for your child and your journey begins.
Building Strengths
Maximizing your child’s core skills and family resiliency to develop a foundation for the journey.
Adjusting to Changes
Making decisions and adapting to your child’s evolving baseline throughout the journey.
Navigating Decline
Re-orienting goals and finding support alongside declines in your child’s condition, preparing you for the end of your child’s journey.