A social worker can advise you on the steps to take as you plan for the transition. An attorney can assist with navigating legal concerns and advise you about involving a financial planner. Your child’s primary physician can suggest a new adult clinician if necessary, and the specialists can recommend adult counterparts if appropriate. Palliative care clinicians can help guide the process, and offer support for making decisions that work with your family’s needs and values.
Transition to Adulthood
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Some children with SNI will live into adolescence and beyond. As they mature, there will be emotional and practical matters to consider. It is important to understand, anticipate, and plan for the issues that may arise. The period to begin thinking about your child’s transition to legal adulthood typically begins in mid to late adolescence, giving you time to seek guidance and gather information.
Systems of care differ from one country to the next. While some of the content included in this chapter may be useful regardless of where you reside, it is based on systems in the United States of America.
Adapting to Diagnosis
Collecting information, care and support as issues emerge for your child and your journey begins.
Building Strengths
Maximizing your child’s core skills and family resiliency to develop a foundation for the journey.
Adjusting to Changes
Making decisions and adapting to your child’s evolving baseline throughout the journey.
Navigating Decline
Re-orienting goals and finding support alongside declines in your child’s condition, preparing you for the end of your child’s journey.